It's been quite a while since I've blogged here, or anywhere for that matter. I'd like to say it's because there's nothing to report, or I didn't have anything to say, but that would be an outright lie. The truth of the matter is things have been crazy go nuts and unpleasant and I didn't want to talk about it. I didn't want everyone to know how crappy things had gotten and how fast they'd gotten that way. I didn't want to have to deal with the pity or the constant stream of "cheer up". I think I hate that most. People telling me to simply stop being unhappy, as if it were a switch I could flip, as if I choose to be this way.
Anyway, I'm feeling better now, things are better now, so I don't feel so hesitant about finally cluing you all in about what's been going on. My labs had been pretty bad. Like, apparantly life threatening bad. My nurses didn't help with their perpetual speeches on what could go wrong and all the numerous ways I could die. It also didn't help that they were implying it was my fault, that I had done something wrong, that the source of my problems couldn't possibly be anything but my own incompitence. It got to the point where I was afraid to go to sleep because I was certain I wouldn't be waking up. So I had my doctor put me back on ambien so I didn't have a choice. I would HAVE to get some sleep. It helped. I feel a little less crazy now.
It looked like I was going to be taken of the home dialysis and put back on hemodialysis which meant more surgery; removing my pd cath, installing a new cath in my jugular and getting a fistula. That didn't bother me. I don't mind surgery, hemodialysis isn't so bad. It was all of the "you're going to DIE" speeches I was getting, and all at once from my nurse, my nutritionist and my social worker. it was a little overwhelming, especially when right after they wanted me to decide to either keep trying the PD or go to Hemodialysis. I felt like I was under attack, really, on all fronts. You know how, in movies a character will be bombarded by other characters talking all at once and the camera moves in a big circle and the main character is looking every which way, completely dumbfounded? It was a lot like that.
When we (my dad and I) finally got out of there, it was a lot easier to think, to measure the pros and cons, though I was still no closer to a decision. Thankfully things are much simpler now. I met with my nephrologist and he says my labs since then are improving, that I look good and should give the PD another shot. Cool. I can do that. I like Dr.Fox. He doesn't waste time making unsubtle accusations. he pinpoints the problem and tells me what needs to be done to fix it. He explains things and answeres my questons. So that's resoved for now and I'm breathing a lot easier. (literally and figuratively)
And now to the good things that have been happening.
I got to hang out with Candice in manitou not too long ago. That was a blast. We checked out the shops and had lunch at the Ancient Mariner where we totally monopolized the juke box with awesome music. It was something I really needed. Just to get out and enjoy myself with a friend and not have to worry. I got to show off my nerdy knowledge of minerals at a rock shop and even though I only spent money on food and the juke box, it was satisfying. After Manitou we went to old colorado city and Celebration, an amazing, huge, well stocked metaphysical store where I finally blew some cash. I got myself a couple spell kits, a new, bigger scrying mirror with a stand, a chalice and an alter paten. It's just what I needed to jump start my spiritual side. I'd like to go back soon. Celebration has such a wonderful, calming atmosphere, and everyone there is so open and friendly.
We had dairy queen after our splurge at Celebration, which was also fun. Candice let me try her marshmellow shake, which was amazing, and I got a huge fudgy sundae with brownies and oreo bits and melted mashmellow sauce. (I had to take like eight phospherous binders after, but it was so worth it.) All in all a very good day. I cleaned like mad when I got home. Dunno why. Just got the bug, y'know? You start by putting something away, then you get rid of that pile of clutter. Next thing you know, you're vacuuming the stairs.
went to the citadel yesterday and got myself a new dress to wear for rituals and whatnot. It was actually pretty uneventful. Didn't find anything that I OMG had to have!! Got a pretzel for lunch, a smoothie and a cookie and eventually sat down on one of the big couches they have down by the escalators. i only meant to sit for a while, but wound up falling alseep for an hour. Whoops! The only reason I didn't sleep longer was because some dude wanted to know how much it cost to get my hiar this purple. The look on his face was golden when I (very groggily) told him it only cost 10 bucks.
And that brings us to today, which I have spent mostly in bed doing my dialysis, reading comics or watching Wolverine and the X-Men on youtube. I think I walked a bit too much yesterday. I'm sore and tired and slightly cranky. Oh well.
oh! Speaking of Wolverine and the X-Men, it's actually really awesome. Much closer to the comics than I expected and much much better than X-Men evolution. :) I'm still getting used to the design for Nightcrawler. (his hair bugs me) but his voice and attitude and everything else = perfect. the entire cast is great, the designs spot on. I need to get this on DVD.